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Episode 31, 13 MIN 22 SEC , MP3 FORMAT

Genetic Testing and Young People

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"When I came to this topic of genetic testing in children, there had been much written by lawyers and ethicists, clinicians and counsesllors... I wanted to know whether young people actually experienced those impacts themselves and how they felt about genetic tests that they had had." - Dr Rony Duncan

Dr Rony Duncan

Dr Rony Duncan works in the field of Medial Ethics. She uses empirical evidence to add to bioethical debates that arise as a consequence of advances in science. Rony works at the Centre for Adolescent Health at the Murdoch Children’s Research Institute.

In 2006, Rony received a Young Tall Poppy Award for her achievements as a young scientist. In 2007 she was the recipient of an NHMRC Public Health Training Fellowship, which will allow her to pursue her research interest at the intersection of ethics and adolescent health.

Rony has a regular position on 3 Triple R Radio’s medical chat show as an ethics commentator. She also sits on two ethics committees: the Clinical Ethics Advisory Group at the Royal Women’s Hospital and the Melbourne IVF Clinical Review Committee.

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USEFUL LINKS

Publications

  • Duncan RE, Savulescu J, Gillam L, Williamson R, Rogers J, Delatycki MB. “Holding Your Breath”: Interviews with young people who have undergone predictive genetic testing for Huntington Disease. American Journal of Medical Genetics 2007;143A:1984-1989.
  • Duncan RE, Foddy B, Delatycki MB. Refusing to provide prenatal tests: Can it ever be ethical? British Medical Journal 2006;333:1066-1068.
  • Duncan RE, Delatycki MB. Predictive Genetic Testing in Children and Adolescents: Where is the Empirical Evidence? Clinical Genetics 2006;69:8-16
  • Duncan RE, Delatycki MB, Collins SJ, Boyd A, Masters CL & Savulescu J. Ethical Considerations in Pre-symptomatic Testing for vCJD. Journal of Medical Ethics 2005;31:625-630

Tall Poppy Award - Website of The Australian Institute of Policy & Science

Centre for Adolescent Health

Murdoch Children's Research Institute

 

 

CREDITS

Host: Dr Shane Huntington
Producers: Kelvin Param, Eric Van Bemmel and Dr Shane Huntington
Audio Engineer: Craig McArthur
Theme Music performed by Sergio Ercole. Mr Ercole is represented by the Musicians' Agency, Faculty of Music
Voiceover: Paul Richiardi

Series Creators: Eric van Bemmel and Kelvin Param

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